At least 1,200 vets got a letter from VA telling them they have ALS, when they don't.

by Larry Scott, VA Watchdog dot Org

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Information has been floating around the Internet for a couple of days that indicated the VA mistakenly sent out letters to at least 1,200 veterans telling them they have ALS (Lou Gehrig's disease) when they don't.

The Associated Press has now verified that.

It is being reported on the National Gulf War Resource Center (NGWRC) web site that the letter says:  

"According to records of the Department of Veterans Affairs (VA), you have a diagnosis of amyotrophic lateral sclerosis (ALS). This letter tells you about VA disability compensation benefits that may be available to you."

And, Denise at NGWRC has an explanation as to how this happened ... a coding error.

Paul Sullivan at Veterans for Common Sense has asked for an investigation and has indicated VA should release information on this soon.

But, not soon enough.

This is part of a VA pattern of keeping quiet about problems like this.

Earlier this year we reported on a letter that was sent to vets by the VA telling them they were Vietnam veterans and giving them information on benefits.  But, it wasn't so.  It was sent in error.  And, many of the vets who got the letter didn't qualify as Vietnam veterans under current VA rules.

That story about the VA's silence on the bogus benefits letter is here ...
http://www.vawatchdog.org/09/nf09/nfmay09/nf052209-1.htm

And, I can't tell you how many veterans get the old "We have received your claim and are working on it" letter from the VA when they don't have an active claim.  It recently happened to Veterans' Advocate Jim Strickland.

It's time for the VA to realize that the old Public Affairs rule taught to the military for many years really does have some value: 
Maximum Disclosure, Minimum Delay.

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1,200 veterans wrongly told they got fatal disease

By P.J. DICKERSCHEID
Associated Press Writer

CHARLESTON, W.Va. — Former Air Force Reservist Gale Reid received a letter from the Veterans Affairs Department that told her she had Lou Gehrig's disease, and she immediately put herself through a battery of painful, expensive tests. Five days later, the VA said its "diagnosis" was a mistake.

The Montgomery, Ala., resident was among at least 1,200 veterans who received a letter about disability benefits for ALS, also known as Lou Gehrig's disease, even though they hadn't been diagnosed with the illness, according to the National Gulf War Resource Center. Veterans were initially suspicious of the letters, but still went through the agony not knowing exactly whether they had the fatal disease, which typically kills people within five years.

At least 2,500 letters informing veterans of disability benefits for ALS were sent out, and of those, some 1,200 were a mistake, according to the National Gulf War Resource Center. The wrongly sent letters were supposed to inform veterans of an undiagnosed neurological disorder, according to the Gulf War veterans group, which provides information, support and referrals about illnesses to veterans.

No one knows for sure exactly how many letters were mailed to veterans treated at VA hospitals and how many were a mistake. VA spokeswoman Katie Roberts didn't return telephone messages or an e-mail Monday.

Former Army Sgt. Samuel Hargrove cried Sunday after opening his letter.

"I can't even describe the intensity of my feelings," said the father of two from Henderson, N.C. "With so many health issues that I already have, I didn't know how to approach my family with the news."

So, at first, he didn't. Hargrove later discovered the mistake after talking with fellow veterans in the resource center and online, and he became angry.

Reid was just as upset.

"I've been through a week of hell, emotionally, physically and financially," she said.

Denise Nichols, vice president of the National Gulf War Resource Center, said her group has received calls and e-mails from panicked veterans in Alabama, Florida, Kansas, North Carolina, West Virginia and Wyoming.

"Our fear was this could push somebody over the edge," said Nichols, who was worried the news could lead already fragile veterans to commit suicide. "We don't want that to happen."

Jim Bunker, president of the veterans group, said he talked to someone at the VA and was told the mistake was caused by a coding error. The VA uses more than 8,000 codes for various diseases and illnesses and veterans with undiagnosed neurological disorders, which can range from mild to severe, were accidentally assigned the code for ALS, he said.

ALS is a rapidly progressive disease that attacks the nerve cells responsible for controlling voluntary muscles.

Nichols said she suspected something was amiss because some of the veterans she knew who received the letters did not exhibit any ALS symptoms. Hargrove said he became suspicious because the letter didn't come from his doctor, and Reid said she sought a second opinion even though she believed the letter wasn't the right way to inform patients of a diagnosis.

The veterans groups notified the VA of the problems late last week, and the agency was in the process of calling every person who mistakenly received a letter, Bunker said.

The VA has taken some heavy criticism already this year. In June, Congress questioned the agency over botched colonoscopies at medical centers in Florida, Georgia and Tennessee that may have exposed 10,000 veterans to HIV and other infections. Last month, the VA Medical Center in Philadelphia disclosed that the number of cancer patients receiving incorrect radiation doses had risen to 98 veterans over a six-year period.

The Gulf War veterans group is urging the VA to reimburse any veteran who scheduled additional tests with civilian doctors. Reid said her tests cost about $3,000, though it may take weeks before she finds out how much her private insurance will cover.

"We are trying to work with the VA because we realize it was an error and they were trying to do something right for the people who were diagnosed with ALS," Nichols said. "Basically this was a good effort that ended badly."

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TOPICS: veterans, veterans' benefits, VA, Department of Veterans' Affairs, ALS, letter, diagnosis, bogus